Sunday, September 20, 2015
Looking Towards Autumn
One thing you might not know about quadriplegics is that they lose their ability to automatically regulate heat and cold. Most people shiver when they're called or sweat when they're hot which helps them to regulate their body temperature. When I sweat it usually means that there is something wrong. I have to watch out for a thing called autonomic dysreflexia. My body has a backup system (all bodies. I suppose) that allows me to know when something is bothering my body, a.k.a. noxious stimulus. What this means is that if I have an ingrown toenail that is bothering me. I don't feel it, but sooner or later if it bothers me enough my blood pressure will start to go up and I may begin to sweat. This is my warning signal and once I am aware I need to take action. I will begin by taking my blood pressure every two minutes to see if it's rising. Then I have to find the noxious stimulus or the source of my pain. If I cannot find it, and my blood pressure continues to rise. I may need to call 911 or risk a possible stroke. So we have a checklist to review about possible causes of autonomic dysreflexia. We also have a handout to hand to the EMT technicians and/or emergency room physicians so that they know what action to take. I have to be able to help them understand because my experience shows me that they're not usually looking to read anything in these moments. So, we ran through the checklist and usually we find the source or the noxious stimuli. I have to be very careful about being in the heat or cold because it can trigger autonomic dysreflexia. All this to say it is too hot for me today and I look forward to autumn.
Monday, September 14, 2015
Angels
Some time ago, I was taking the city bus home from the movies when I had a nice experience. Bus made a stop and an older woman got onto the bus. As she was passing by me, she asked me if it would be all right for her to touch me. I told her I didn't mind and she put her hand on my shoulder before she continued on to find a seat. She sat behind my caregiver. She asked my caregiver if she thought I would mind if she asked me a question. My caregivers told her that she didn't think so and to just ask me.
She told me that she was somewhat psychic and that she just wanted to let me know that I had angels all around me. I told her that I knew that they were there.
It was a lovely experience because I always wanted someone to tell me that. I have experienced a lot of loss in my life and whenever I would see mediums telling people messages from their departed loved ones, I would feel neglected in that I never heard from mine.
There are plenty of angels surround me in real life or in my day to day life. I have my partner, Colleen , who helps to keep me cheerful most of the time. I have family members that come to see me on a regular basis. And I usually have a house full of caregivers helping me on a day-to-day basis. If ever I felt alone in my life, I certainly do not feel alone now. Thank God for that. Recently I had home healthcare workers visiting me due to a pressure sore (which has healed now) and they told me stories about most the people they see. They confirmed how lucky I am to be cared for so well.
She told me that she was somewhat psychic and that she just wanted to let me know that I had angels all around me. I told her that I knew that they were there.
It was a lovely experience because I always wanted someone to tell me that. I have experienced a lot of loss in my life and whenever I would see mediums telling people messages from their departed loved ones, I would feel neglected in that I never heard from mine.
There are plenty of angels surround me in real life or in my day to day life. I have my partner, Colleen , who helps to keep me cheerful most of the time. I have family members that come to see me on a regular basis. And I usually have a house full of caregivers helping me on a day-to-day basis. If ever I felt alone in my life, I certainly do not feel alone now. Thank God for that. Recently I had home healthcare workers visiting me due to a pressure sore (which has healed now) and they told me stories about most the people they see. They confirmed how lucky I am to be cared for so well.
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